PACOP is a national palliative care program that provides a clinical framework, education and service reports to participating residential aged care providers. Learn more about the programs development, objectives, and our team.

PACOP supporting Aged Care Homes in optimal palliative care for their residents, families & staff

PACOP Development

The Palliative Aged Care Outcomes Program is run by the University of Wollongong. Within the Science, Medicine and Health Faculty sits the Australasian Health Outcomes Consortium, a research consortium that generate robust evidence through the provision of clinical quality registries in rehabilitation, pain and palliative care.  

UOW’s Palliative Care Outcomes Collaboration (PCOC) national team and collaborating researchers were supported by a philanthropic grant in 2019 from the J.O and J.R Wicking Trust, which enabled early development, modification and piloting of the clinical assessment/response framework, as the ‘PCOC Wicking Model’, for use in residential aged care settings. The benefits of the model and study findings were published and can be found on the publications page. Following the success of the PCOC-Wicking pilot further modifications to the model were made in collaboration with participating aged care providers and stakeholders. The model was officially launched in 2021 as the Palliative Aged Care Outcomes Program, a sister program to PCOC, and is fully funded by the Australian Government Department of Health and Aged Care.

 

PACOP Objectives

PACOP aims to;

  • Improve palliative and end-of-life care outcomes for residents and their families.
  • Support aged care homes to deliver high quality, safe and culturally appropriate palliative care that meets individual care needs.
  • Empower general practitioners (GPs), aged care providers and other healthcare workers with confidence and knowledge of palliative care and advance care planning.
  • Facilitate collaborative links and relationships between primary care, aged care and palliative care services.

Get to know our team

Professor Claire Johnson (RN, PhD) is the National Director of the Palliative Aged Care Outcomes Program (PACOP).  Claire led the national implementation of the PCOC/Wicking model for Residential Aged Care. As the recent Vivian Bullwinkel Chair of Palliative Care Nursing (Monash University - Nursing and Midwifery) and Clinical Lead for End of Life Care (Eastern Health, Melbourne, Australia), Claire directed an extensive portfolio of clinical, behavioural and translational research. This research has helped to improve the quality and safety of care, and outcomes for people diagnosed with a life-limiting illnesses and of their families and carers, irrespective of the setting of care. Claire’s experience in clinical settings, research and leading change has equipped her to promote excellence in the care of people dying in residential aged care.

Portrait style photo of PACOP Director Claire Johnson

Laura has over 12 years of experience as a Registered Nurse and has worked across all areas of health service delivery including tertiary hospitals, primary care and aged care settings. During this time Laura has developed a passion for education and quality improvement and completed her Masters of Nursing Degree with a major in Clinical Education. Laura’s most recent roles include working in Clinical Management positions within Aged Care where she was responsible for planning and overseeing clinical care delivery, multidisciplinary collaboration, clinical policy development, and quality improvement programs.

Stephen first joined AHSRI in 2019 as a Research Assistant. He currently provides Analysis/Statistics support PACOP.  Stephen has obtained a Master of Statistics and a Bachelor of Science (Physics) at the University of Wollongong.

Bronwyn Arthur joined PACOP as an Improvement Facilitator in March 2022.  She holds a Master’s Degree in Palliative Care in Aged Care.  Bronwyn is a Registered Nurse, and has worked in various roles in her career, namely as a Clinical Educator and a Clinical Nurse Practitioner.  Her main focus has been in the care of people living with dementia and end of life care; she has a history of working in palliative care, the acute setting and in aged care homes.

Kaitlyn is has over 10 years’ experience as a registered nurse, graduating from the Queensland University of Technology in 2012 with a Bachelor of Nursing. She has extensive experience in aged care and palliative care, both in the community and care home setting. Kaitlyn has also spent significant time working in the not-for-profit and charity sector in Queensland. In 2022, she graduated from the University of Tasmania with Graduate Diploma of Health Services Management.

Karen Urbanik joined PACOP as an Improvement Facilitator in January 2025. She is a Registered Nurse with over 25 years’ Palliative Care experience in the community setting, and as a Palliative Care Clinical Nurse Consultant in aged care. Karen holds a Master’s Degree in Palliative Care and a Graduate Certificate in Cancer Nursing. 

Natalie Joseph is an Improvement Facilitator with PACOP. She is a registered nurse with over 13 years experience in a variety of clinical settings.  This includes working in residential aged care for 6 years as the Clinical Lead for a large aged care organisation during which time she was responsible for setting up and providing clinical direction and governance for a dedicated palliative care unit.  She has over 3 years experience working as an Improvement Facilitator for PCOC and was involved in the development of the PCOC Wicking program.  She also holds a Graduate Diploma in Palliative Care from Flinders University.

Simon is a Registered Nurse with a passion for Palliative Care. He has practiced in specialist Palliative Care in both rural and metropolitan centres in NSW. Simon also has a passion for education and has worked in clinical specialist and training roles for clinical trials and medical device companies in the UK. Prior to joining the PACOP team, Simon was a Project Officer at Palliative Care Victoria, focusing on cultural safety for Aboriginal and Torres Strait Islander community members accessing Palliative Care services. 

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Aidan joined the PACOP team in April 2025 and graduated from UOW with a Bachelor of Mathematics (Honours) in 2020, majoring in Applied Statistics. Since then, he has worked for 4 years as a biometrician at UOW, providing statistical support and analysis across a diverse range of biological datasets.

Max has worked for the AHSRI IT Team for over three years as IT support for the outcome centres including the Palliative Care Outcomes Collaboration (PCOC) and the electronic Persistent Pain Outcomes Collaboration (ePPOC). Max joined PACOP in January 2023 as Data and IT Technical Support Officer after assisting in the design and development of palCentre for PACOP. Max brings his in-depth understanding of palCentre and IT to support aged care homes implement palCentre.

Zoe joined AHSRI in 2022 and provides administrative support to the Palliative Aged Care Outcomes Program.

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Julieanne joined PACOP in 2024 and provides administrative support to the Palliative Aged Care Outcomes Program

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PACOP will support aged care homes to identify those residents and, by extension, their families with palliative care needs and ensure care is responsive to these needs. We will help aged care organisations embed standardised outcomes assessment and to use it to improve the quality of care for the dying.
Professor Claire Johnson Image description: Dr Claudia Bausewein (left) and Professor Claire Johnson (right) at the PCOC Outcomes and Benchmarking Conference 2019

Contact us

Palliative Aged Care Outcomes Program
c/o Australasian Health Outcomes Consortium
Building 232, Level 2 (Mike Codd)
Innovation Campus
University of Wollongong
WOLLONGONG NSW 2522

Phone: (+61) 02 4239 4151
Fax: (+61) 02 4221 4679
Email: pacop-enquiries@uow.edu.au

Submit an enquiry to the PACOP team

Visiting PACOP